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S 1838 Passed a chamber

Directs the National Institutes of Health to run a Down syndrome research, training, and investigation program called the INCLUDE Project, and requires biennial reports to Congress on the research it supports.

Official title: DeOndra Dixon INCLUDE Project Act of 2026

Next stop House: awaiting action
Timeline each lane is a chamber; dates pull from congress.gov actions
House
Received 10-AUG-2026
Senate
Introduced 21-MAY-2025
Referred 21-MAY-2025
Passed 06-AUG-2026
Key points
  • Requires the NIH Director to carry out a research, training, and investigation program on Down syndrome, called the INCLUDE Project.
  • Covers topics including co-occurring conditions such as Alzheimer's disease and autoimmunity, more clinical trials that include people with Down syndrome, and quality of life for individuals and families.
  • Directs NIH institutes to coordinate their Down syndrome research and to prioritize work that does not duplicate existing NIH research.
  • Requires the NIH Director to submit biennial reports to House and Senate committees cataloging the research conducted or supported under the program.
AI-generated from the Engrossed in Senate text of 06-AUG-2026 · verify · report an error
Official CRS summary

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Committee referrals (1) Policy area

Health

Sponsor John W. Hickenlooper (D-CO) Cosponsors · 9
■ 6 D■ 3 R